Saturday, January 21, 2012

January 20

This has been an interesting week here in Bothell.  It started snowing on Sunday and continued through Thursday accumulating to about 7 inches.  Therapy was canceled all week and we decided it was a good idea to stay off the roads considering people in this area are not used to driving in snow!!!  So I have been in the RV for an entire week (since last Friday) and Bob only ventured out one day to buy some groceries and get a prescription.  Violet loves the snow and spent as much time as she could playing in it.  It started warming up this morning and is slowly melting away, turning to slush.  We are hoping not to experience any flooding… 

The medication prescribed by Dr. Raghu for pulmonary hypertension arrived today by UPS.  The insurance company was billed for $6,300 but we only had a $12 co-pay!!!  That is a 30 day supply….  Sure hope it helps!   This was for a half tab dosage.  If till on it after 30 days, then the dosage doubles, as does the cost. 

A heart cath has been scheduled for next Tuesday so that will be a long day at UWMC.  Can’t have anything to eat or drink after midnight the night before and the procedure isn’t until 1:00 so I will be very hungry by then!!!  The heart cath should determine the severity of the pulmonary hypertension which is part of the IPF disease. 

Bob has been cooking meals for us and doing a good job.  I try to come up with simple ideas that require little preparation.  Sure wish I could be doing the cooking myself though!!!  (Bob agrees).

Well, hope all is well out there!  We are hoping to get this show on the road so we can go home!!!!  Never dreamed we would be here this long waiting.  A year ago this month we were here for a week of testing to get on the list! 

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