Friday, May 25

6 weeks post transplant!  Drugs for stomach issues working fine and I’m feeling much better.  Had a bronchoscopy on Tuesday and the inside of my lungs look good and ahead of the game on healing! 

Good to be back at therapy and doing something to get my strength back.  They were all very excited to see me and marveled at how I could just walk right in without oxygen. 

We had a wonderful meal with Dan and Terri on Sunday.  It was good to visit and Terri is an awesome cook!  First time we have been to their house since transplant and we needed to celebrate! 

Wednesday after therapy Bob went to the Caregiver Support Group meeting at UW.  I stayed home and took a nap!  Our friend Caron from Homer, AK e-mailed first thing in the morning to say she got ‘the call’ and they were at UW.  Bob checked on them and she was scheduled for surgery about 4:30 p.m.   “Dry run” and sent home around 6:30 p.m.  Seems like the potential donor had some issues.  Lungs were not usable.  We hope she gets the real call soon. 

Thursday a trip to Costco to pick up my sunglasses that I ordered.  Besides that, a day of not doing much.  Just breathing….  What a good feeling.

Friday a visit with Dr. Raghu, x-ray, breathing test, and of course, the forever blood draw.  Breathing test showed within normal range and improving!  Yeah!!!

It is getting so much easier to do this test and I don’t dread it anymore.  Chest x-ray looked good too.  Bronchoscopy was good although they are finding something growing from the sample so we will find out about that next week when I see Dr. Rakita.  Nothing to worry about at this point.  Overall, I am doing really well after 6 weeks. 

Went to Pulmonary Rehab this afternoon and did both PT and RT for the first time post transplant.  It was good.  My oxygen saturation rate never got below about 94 which is awesome!!!!  Most of the time it is 98 and above. 

Libby says Violet loves mushroom picking and sent pictures of her with mud all over her legs!  She is having a great time and she couldn’t be in a better place.  She did spend last week-end with Jim, Marci and Cassie and I’m sure she had fun there too.  She is certainly not lacking for attention!!!!

Looking at a change in rv….  Might be a motor home… Bob’s dream is the space of a 80’, in only 25’, with the economy of a motorcycle.  Gotta dream. 

All for this week….  Might be a change in appearance of our blog soon.  Thinking of changes..